Jun 242016
 

Suzanne Kelly responds to Sarah Malone’s claim: “I would categorically dispute any claims that we have purposely made life difficult for the neighbors or done things that were wrong,” she told NPR earlier this year. “We simply haven’t.”
Kelly concludes there are only two possible explanations for Malone issuing that quote: either Malone is ignorant of what happens on her watch and what she herself has said and done – or she is a liar.

Munro bunds gateSarah Malone Bates is under siege; I almost start to pity the Trump spokesperson – then I recall what has happened at Menie.
Plucked from the relative obscurity of a post in a small Aberdeen museum and placed in charge of what was meant to be a multi-million pound golf/hotel/housing complex, she had no relevant training or experience.

She had however won a beauty contest and she had married the editor of the local newspaper.

Over the past 6 years she’s stuck to the Trump line on all of the issues arising from Trump’s presence: that Trump is welcome in the area, only a few people object to Trump’s activities, The Donald is ‘pumping hundreds of millions of pounds in the area’ and the club is a huge success. All around her are the signs that all is not well.

And yet she continues to issue statements which lack factual basis. Claims such as the ‘hundreds of millions of pounds’ spent in Scotland have been largely unchallenged in the press; I’ve written to the club for proof, but like all my recent emails to TIGLS, it remains unanswered. This latest pronouncement though – the ‘categorical’ denial of anything being wrong with how residents and others are treated – is clearly untrue – and she knows it.

You will find all the back up to the following bullet points in sources including the documentary ‘You’ve been Trumped’, in Andy Wightman’s report on the Menie Estate and in the Aberdeen Voice archives. Here is a partial selection which demonstrates Malone’s denial must either mean she is not telling the truth – or does not know what she has said and done, and what goes on at the course she manages.

Malone’s got off relatively Scot-free with her quotes in the past. Here are just a few reasons why Ms Malone should not get away with it this time. But first, a look at what her word is worth…

“I can’t work for someone I don’t believe in”

Malone started working for Trump in 2009. She told the Herald Scotland she believes in him:

“We have a world-class developer whose brand is associated with luxury and excellence. I think he is a visionary, a very positive man. I can’t work for someone I don’t believe in.”

She’s still working at TIGLS, so we can conclude she still believes in Trump. Despite the racism, the sexism, the nationalism: she believes in him still, or she would have quit. She stands by her bigoted man. Either she shares his views and believes in him – or she isn’t a bigot, but has already made herself dishonest by this Herald Scotland post. Now she says that nothing amiss has happened. The question is – do you believe in her?

Amnesia? Being Economical with the Truth? Or just plain lying?

Maybe you will agree with Executive Vice President Sarah that there’s nothing amiss in how she has and is treating residents, journalists and visitors. Here is a bullet point list to recap some of the incidents that happened under her watch, in no particular order.

  • Trump private security guard threatens established photo journalist Alicia Bruce “I’ll smash your camera”. Bruce wants to press charges but the police (which have a ‘special policy’ for the Menie Estate) dissuade her from doing so.
  • Accessing without permission David and Moira Milne’s lands, removing a fence, damaging property, accidentally cutting a telephone line in the process of this unauthorised work – and sending an exorbitant bill to the Milnes for the fence.
  • Trying to charge Michael Forbes with theft after he removed marker flags from his land/disputed land which had shown up without any explanation. The police were instructed – by whom I wonder – to charge him with theft of goods worth £11, although he had made no attempt to retain these flags.
  • A local area resident was taken against his will to the clubhouse to explain where he was walking and why – in complete contravention of his rights. He had been on his way to Michael Forbes’ farm, and the security guards prevented him doing so before grilling him.
  • Construction workers ‘accidentally’ cut off the water supply to Michael Forbes’ property, forcing the family, including 80 something year old Molly, to go to a stream to collect water by hand. Over a week passed before anything happened. The water supply is still not satisfactorily restored.
  • Anthony Baxter and Richard Phinney went to the site office while filming, and asked the manager when water would be restored to the Forbes Farm. Someone – I wonder who – then called the police and reported the two journalists for a ‘breach of the peace’. They were stopped by a patrol car at Susan Munro’s cottage, and with one police officer growing increasingly aggressive, the two reporters were bundled into the police car, held, their cameras and recordings temporarily held. They never got their day in court, as charges were dropped. The National Union of Journalists condemned this unprecedented act.  If Sarah had no idea this happened, she can’t be paying attention.
  • Blocking Michael Forbes’ access to the beach, preventing him from further salmon fishing.
  • Someone – I wonder who – called the police to say protestors were at the Forbes House and police responded to find no protestors – but rather surveyors from Trump’s camp on Forbes’ land, causing damage. Forbes told the police that this was a boundary dispute and the surveyors had no right to be on the disputed land – and as should not be the case, the police made Forbes stand by and watch as the Trump operatives accessed his land, damaging his boat and other property. Who possibly could have called to report protestors at a sparsely populated farm when there were no protestors?
  • Continuous, ongoing deviations from the approved plan – from the giant flagpole to building a huge wall of earth between Leyton Farm Cottage and the cottage’s former views of the sea and its light. Sand and dirt from this mound got into the cottage, killed plants in the garden, and damaged vehicle engines.
  • Allowing Leyton Farm Road to deteriorate making it veritably impossible for residents to use the road; it was eventually patched up after outcry.
  • MEMAG was an environmental group set up to monitor how TIGLS was operating; per its minutes, representatives from Trump simply did not go to the meetings and therefore did not co-operate.
  • Scottish Outdoor Access Code: a giant gate is put at the point Leyton Farm Road meets the new Trump parking lot; it is locked shut. Plants on either side of it prevent anyone with mobility issues accessing the course from that direction – despite requests to open the gates and reminders.
  • Ostensibly so none of the golfers would be upset by offshore windfarms, Trump has fought an offshore experimental windfarm project which would have meant local jobs. The costs for the legal action to the taxpayer are not at present known.
  • Security guards often parked close to Leyton Farm cottage and shone their headlights into resident’s windows late at night.
  • The Trump parking lot, itself not to the agreed planning spec, had very high, bright overhead lights. These shone into the nearby cottage’s windows and were often left on all night. One night the lights were not on was… the night Aberdeenshire council, journalists and the public attended to measure how bright the lights were.
  • Security guards would stop people on foot and in vehicles demanding their identification.

There are more instances.

Kelly calls Malone out

Thinking both of Malone’s ‘belief’ in Donald Trump, and her protestations that the Trump team never “…purposely made life difficult for the neighbors or done things that were wrong,” it is not hard to reach some conclusions. Either Malone is herself a bigot and can thereby support Trump, or she is not a bigot and then ‘misstated’ that she can’t work for someone she doesn’t believe in.

As to the more important, wilder claim she makes, either all the journalists, residents and visitors, and all the local, national and international films and news reports are wrong, but Malone and Trump are right – or Malone either is ignorant of what her employees and indeed she herself does – or she is a liar.

I am ready to publicly debate these issues with Malone-Bates anytime.

  • Comments enabled – see comments box below. Note, all comments will be moderated.
Jun 242016
 

A vigil was held to celebrate the life of the remarkable MP Jo Cox, brutally murdered while looking after her constituents. Dame Anne Begg was one of several speakers at the event; her moving words were impromptu, but for Aberdeen Voice she has written a reconstruction of her message. By Dame Anne Begg.

Jo Cox Mem2I didn’t know Jo Cox but I had heard of her as someone to watch in the new intake of Labour MPs.

I was aware of her humanitarian work and a life dedicated to public service.

Exactly the kind of person who should be an MP.

I have fought most of my political life for increasing the diversity of our elected representatives, to make getting involved in politics attractive enough that more people, with a range of experiences and backgrounds, would want to put themselves forward.

I have fought so that people exactly like Jo Cox wanted to become an MP and was honoured to be elected to the Commons.

If her murder makes it harder to persuade good, decent people to put themselves forward for election, our democracy will be the poorer.

An attack on one is an attack on us all – politician and citizen.

I don’t think we appreciate in this country just how open and accessible our politicians are. We don’t appreciate that we can ask to meet our MP or MSP or Councillor and they will see us. You see them in your community, going shopping, attending local events, out and about and you can stop and speak to them. No body-guards, no cavalcade. Direct contact with the people they have been elected to represent. This is something very rare across the world.

If Jo’s murder makes it harder for us to have that direct access to our politicians because they have retreated behind security measures, our democracy will be the poorer.

Most politicians are decent, hardworking people who want the best for their communities and their country so the constant denigrating of our politicians has to stop.

Constantly saying that all MPs, all politicians in the UK, are corrupt, venal and just in it for themselves has to stop.

The personal abuse politicians get on-line and in e-mails has to stop.

The playing the man and not the ball when people, not surprisingly, disagree has to stop.

The trolling, abuse, threats and misrepresentation on social media has to stop.

The threats of rape, violence or murder that many women receive on social media has to stop.

If it doesn’t stop then the poison wins. Those who want to undermine our democracy win. Those who would do us harm, win.

And if they do, we lose the good, dedicated people our political system is crying out for.

We lose someone of the calibre and talent of Jo Cox.

  • Comments enabled – see comments box below. Note, all comments will be moderated.
Jun 242016
 

Duncan Harley Reviews Footloose – The Musical at His Majesty’s Theatre Aberdeen

Gareth Gates as Willard in Footloose 2The 1980s were pelvic times. Hard Rock, Glam Rock, R&B, Hip Hop, Northern Soul and all shades of everything in-between made quite sure of that.

A torrent of unstoppable sound and movement swept the globe, empowering youth and challenging oldies.

Barriers of colour and creed turned fluid, and a new politics of expression brought young people together in an explosive mixture of sound, dance and visual art.

Except of course in Elmore City, Garvin County, Oklahoma, where evangelical Protestantism and social conservatism contrived to pretty much ban fun. A Bible Belt town of around 600 souls, Elmore has one graveyard, a Junior School and a High School. It features in the Gideon Book of Historical Places, and seemingly the school mascot is Bogey the Talking Badger.

For reasons no one could even remember, fun in the form of dancing had been banned by local ordnance since 1898. On March 3rd 1980, the Elmore School Board voted 3-2 to allow the class of 1980 to hold a school prom.

In ‘Footloose – The Musical’, Elmore has been re-named Bomont. Dancing is strictly forbidden under Local Ordnance 416, and a classic head-to-head between emerging youth and well-established establishment is defo on the cards.

Those who have seen the 1984 film, and who hasn’t, will be familiar with the plot line. Good lookin’ Chicago boy moves to Bomont, tries to fit in and meets rivalry from peers and opposition from elders. Love blossoms, establishment attitudes soften and compromise comes. Everyone starts to have fun and the art of dance is again legalized.

The transition from film to stage both retains and builds on the essential energy of the film, and although perhaps a tad slow in the very early scenes, this production builds steadily to a heady audience-engaging climax by the end of Act Two.

Footloose - Gareth Gates as WillardThe casting of actor-musicians is a brave move but works very well indeed.

Any lingering suspicion that a rock band or two lurks behind the scenes is soon dispelled as Luke Baker’s ‘Ren McCormack’ and Scott Haining’s ‘Cowboy Bob’ strut their stuff and swing those flying guitars.

Even Nigel Lister’s soul-searchingly honest ‘Rev Shaw Moore’ gets in on the musical act with a rousing bass finale.

Add to the mix singer/actor Maureen Nolan as preacher’s wife ‘Vi’, a quorum of swing cowgirls and understudy Luke Thornton’s ‘Willard’ – Gareth Gates was unavailable on first night in Aberdeen – and Footloose really takes off big-time.

With around twenty classic Eighties hits, including ‘Holding Out For A Hero’, ‘Mama Says, Dancing Is Not A Crime’ and the pounding ‘Footloose Finale’, ‘Footloose – The Musical’ served up exactly what the audience wanted, and by the finale had folk dancing wildly in the aisles.

Directed by Racky Plews with David Morgan as Touring Company Stage Manager.

Footloose – The Musical plays at HMT Aberdeen until Saturday 25th June

Tickets from Aberdeen Performing Arts Tel: 01224- 641122

Words © Duncan Harley and Images © APA

Jun 172016
 

Old Susannah turns her head awa frae Aberdeen this week as her lugs pick up gunfire in the States – again. By Suzanne Kelly

DictionaryLand of the Free, Home of the Brave, Bastion of Gun Worship; Americans witnessed another senseless bloodbath this past week. It was an American born Muslim extremist

in Orlando, Florida, with an automatic assault rifle in a nightclub. Which politicians will try to use these deaths to score points and whip up a bit more hatred (give you three guesses as to one of them)? Where will it be next time?

America needs some new slogans. ‘Land of the Free, home of the brave’ just doesn’t cut it anymore.

It seems to me that no one’s genuinely free. Minority groups, women and the poor have one set of laws to govern them, and freedoms are more than a little limited.

There is now an expression specifically for spurious, racially-motivated arrests, ‘Running (or driving) while black’.

The more money you’ve got, the better illusion of freedom you can afford, and the better protected you will be. Policing is biased in many places, and as we’ve seen from the Brock Turner rape case, Justice peeks from behind her blindfold, and can tell when there is some gold on her scales. Law and law enforcement have long since gone their separate way from Liberty. ‘Truth, Liberty and Justice for All’ no longer reflects the reality.

Aside from if you were a Native American, it all seemed such a good idea at the time.

The American experiment if taken literally would see people today free to choose where and how to live, collecting their own rainwater without fear of prison, living off the grid if they felt like it, and dare I say it – using whatever plants (including cannabis) however they chose to.

Funny, no one wants to take the freedom, equality and rights-concerned sections of the Constitution literally – but the NRA certainly wants to ensure that we take very literally ‘the right to bear arms’ (which of course was in the context of having a militia and when muskets ruled, not semi-automatics and Saturday Night Specials).

In the USA there are those who take the bible literally too, and are at great pains to prove the world is only 6,000 years old and the righteous will float up to heaven in the Rapture (NB this is a US invention, not that most of the bible belters will admit that). The only parts of the bible they don’t want to take literally (while they build ‘creation museums’ showing dinosaurs romping with humans) is the ‘love one another’/ ‘do unto others’ bit.

What a selective species we can be. Interpretation of Truth and Liberty have been warped by special interest and greed to the point they’ve broken.

When I moved to the UK from New York people would ask me why, and I’d half-jokingly reply ‘because I don’t want to get shot’. Some would look at me funny; I’d explain handgun proliferation and gun culture to the interested. But no one I met in the UK could really understand why some Americans are dead set on ‘protecting’ themselves with guns.

From all the evidence (accidental misfire killings and wounding;, parents shooting children arriving home late, etc), I don’t understand how a gun ‘protects’ the average Yank either.

One reason I’m going to try and write on this topic (once more) was a post Nick Tesco (a founder of The Members, but you know that) made on Facebook in the wake of Orlando:

“Dear American friends, do these mass murderers see children, church goers and gay people as tools of the tyranny that they’ve been obliged to take up arms against as demanded by your Second Amendment and like your NRA say? Or is that something you might need to take a look at when you’ve finished giving women a hard time about abortion?”

21st Century – Still tribal after all these years.

In his post Tesco seems to be asking for an American re-examination of values, guns, the meaning of freedom, and where the focus of securing freedom should be.

Tesco’s since qualified his post; he well knows that not all Yanks are the problem, and if you look at the UK through a similar lens, you might not see a pretty picture either.

For instance there is some unnecessary, ugly violence going on over the beautiful game in France at present. Nationalistic fans clash with nationalistic fans in the streets and bars of France on some primitive tribal quest to prove who’s the most warlike (and I suppose to their minds this makes them superior, manly, desirable). Things aren’t different in the US. Scenes at pro-Trump rallies make thinking-people cringe, and that’s before the violence starts.

What is the American Republican/Democrat push-pull if not mindless tribalism? Everyone wants their side to win, and most people stick with whichever party their parents belonged to. No one looks at what their elected officials’ backgrounds are or what entities fund them and chooses – just whether the elephant or the donkey wins.

You might be living in a trailer park on benefits in America, but if mom and dad were Republicans, you’re likely to vote for a billionaire because he’s in the Republican livery, however exploitative he is of you and your fellow poor Americans. The ingrained desire to be a ‘winner’ overrides logic, fact, and common sense for some.

There is a lot to love about America – most of the people, the environment, and the idea of liberty.

How, when and why did a country which declared the notion of freedom being its core value turn into a racist, sexist, elitist police state governed by the rich for the benefit of the rich and their richer multinational masters? Perhaps being formed on top of, rather than along side of, Native American rights and values, and on the back of slavery meant the American dream was always going to become a nightmare, but the bloodshed and inequality has to be countered before it’s too late.

Ultimately I don’t think it’s too late to turn it around (or I’d not bother writing about it) but this must happen now before more ground is lost to the crooked cop, the bent judge, the lobbyist-controlled congressman and the multinational.

An observation which may or may not be a non-sequiter came to mind. I’ve a good number of intelligent American friends and acquaintances; most far more intelligent than I am. A few have put their brains into music, art, politics; the majority have harnessed their talents to making money. I can’t help but think if they hadn’t been conditioned to think that money equalled success that such talent could have been applied to creative, political and humanitarian ends.

I also can’t help but think for some people, they’d be a lot happier if they hadn’t been worried about being a lot richer.

You might think you are freer in the US than in other places. Gun-loving Americans clutch their guns and decry they will use them to guard their freedoms. They think this is freedom; they think it is a free country. I beg to differ. Here are a few thoughts on how freedom is doing these days.

Free Elections?

Turning back to gun violence, there are many worthy groups fighting to get guns under some form of control. Why don’t people just vote for congressmen who will deliver gun control, and that will be the end of the problem?

In order to run for office, a candidate needs millions of dollars. Perhaps candidates start out with high hopes and best intentions. I respectfully suggest that with a few notable exceptions, by the time they raise this money, they will get their hands dirty. They will owe favours. Will they owe the National Rifle Association, arguably the most powerful lobbying group in America? More than likely.

“According to OpenSecrets, a site that tracks money in politics, the NRA spent $984,152 on campaign contributions during the 2014 election cycle. It also spent more than $3 million on lobbying in both 2013 and 2014. The NRA also spent $28,212,718 on outside political contributions during this period, which includes ads paid for directly by the NRA. That makes it the tenth biggest spender when it comes to such political spending.”
http://fortune.com/2015/12/03/san-bernadino-nra-political-spending-gun-violence/

Voting is a right people fought for, but not everyone uses. About 40% of the country will either not bother to turn out for a presidential election – or do not vote for more sinister reasons.

There are those who want to vote – but get turned away in increasing numbers for spurious reasons. Names go missing from electoral rolls. Last minute demands for photo ID sends some away. In a paradox, questions were raised about some of the votes delivered from Florida by Governor Jeb Bush to clan Bush member Dubya – were all of those who voted: alive, able to vote, received postal votes themselves that they alone completed – questions remain.

Can elections be rigged? Of course. Does that only happen in the third world? Of course not.

So, we are not free to select the best candidate to run for office; we are selecting from candidates pre-selected by vested interest groups who give their candidates enough money to run. We are not free to vote if we are turned away because of unconstitutional practices, and racism does still stop people from getting to the ballot box:

“Thousands of black electors in Florida were disenfranchised in last November’s [2000] election by an electoral system tainted by “injustice, ineptitude and inefficiency” a leaked report by the US civil rights commission says. It accuses Governor Jeb Bush, the president’s brother, and his secretary of state, Katherine Harris, of “gross dereliction” of duty, saying they “chose to ignore mounting evidence” of the problems. 

“The eight-strong commission, whose report will be published on Friday, found that black voters were “10 times more likely than white voters to have their ballots rejected”, and pointed to the use of a flawed list of felons and ex-felons to purge the voting rolls. https://www.theguardian.com/world/2001/jun/06/uselections2000.usa

Freedom fail.

Tesco also once posed on Facebook that everyone should vote; this is true up to a point. Not that I take all my political leads from musicians, but Jerry Garcia is attributed with having said (I paraphrase again) ‘If you vote and choose between two evils, you are still choosing evil.’

So – while I must vote for Clinton – as a vote against Trump – it is not because of any woman solidarity, and it’s certainly not because I approve of her Monsanto links.

She is clearly the better choice over Trump. A nation of 260 million people – and it comes down to this. I might well write in George Takei who has always spoken out against violence and intolerance, or for heroic filibustering senator Chris Murphy whose stamina has forced a congressional vote to ‘close the terror gap’.

In the end, I will vote for Clinton, to avoid the Trump presidency, and the catastrophe that would spell. (besides which, I’d like to be able to visit the US in the next 4 years without winding up in a boiler suit on my way to GitMo). As far as I know, unlike Trump, Clinton’s not racked up 3,500 lawsuits, hasn’t opened a fleecing operation posing as a ‘university’ and doesn’t want everyone armed. She’s no plans to ‘take out’ people related to terrorists, or to ban Muslims / American Muslims from travel.

Free to have guns.

Anything you need to know about the illogic and insanity of having automatic weaponry freely available can be found in Michael Moore’s Bowling for Columbine documentary. The sad thing is that this film was made in 2002. Oh, and the wealth and power of the NRA tells you why the country is like this.

Life, Liberty & the Pursuit of Happiness.

At the same time we Americans are telling ourselves how ‘free’ we are, and how we want to bring freedom to other countries (frequently those with resources NB), liberty is getting a beating at home and abroad. The same ilk of senator who will keep automatic guns on sale is legislating to give American water not to Americans, but to sell or give it to companies like Nestle, which is bottling it up and signing lucrative deals to take water in states like Oregon.

Want to collect rain water on your own property? In many states that will land you in prison – like Oregon, which is giving your water to Nestle.

Nick Tesco is right in his Facebook post when he alluded to abortion, but it is actually worse and worsening for any woman who wants control over her body and life. Have a spontaneous abortion – don’t do it in certain states, or you’ll go to jail for failing to carry full term.

There are places where you will be mauled by a police dog, beaten to a pulp or beaten to death – or shot for offences like having a tail light out on your car, driving too slowly, running, or just being non-white in a white area. The police are brutal in some states. There is no other way of putting it.

And Justice for All? 

Some police officers are people who want to make the world better; however, organisations like Police the Police are proving time and again that the police force today includes Ku Klux Klan members, paedophiles and sadists. They largely seem immune from prosecution – while the guy collecting rain water or trying to live ‘off the grid’ will spend years in prison. In some states, growing marijuana can lead to decades in prison.

However, if you are white, privileged – and a good swimmer – raping an unconscious woman will get you a few months in a cell at most.

I’d add a description of how Native Americans have been treated past and present – but I cannot do it justice at all. Here is a good place to look at one issue though – the veritable kidnapping of Native children who are chemically coshed and placed with white, extreme ‘Christian’ families for no good reason other than money is made from it, and families and culture is destroyed in the process. This is the tip of the iceberg for Native issues.

It’s lunacy, and as far as the eye can see, the root causes are greed and self-interest.

Does this make me a conspiracy theorist?

Does it serve the interests of those in power when these incidents happen? It doesn’t always hurt. You’ve got Trump insisting if everyone had a gun, Orlando wouldn’t have happened (so no hostage or crossfire casualties in his world I suppose). When the serial killer in question is non-white and non-Christian – then the authorities insist we have an Islamic jihad problem that can only be served by the rest of us giving up more of our freedoms and… by panicking the suggestible into buying guns to protect themselves.

We know how well that works out.

CODA

Just as I finish this piece, Jo Cox MP has been shot and stabbed; she supports the Remain campaign, and works to help Syrian refugees. Allegedly the assailant yelled ‘Britain First.’ [17 June:  Jo Cox has been murdered. Britain First’s Facebook page has a BF ‘news’ item that the murderer didn’t shout ‘Britain First’ – they shouted ‘Put Britain First’.  A trivial distinction which ignores the fact she is dead, and those who have worked tirelessly to ratchet hatred up several notches are at least in part culpable.]

If the reports prove true, and they are a Britain First supporter, they have shown BF in its true light. Despite its many Facebook posts using click bait such as veterans, dog fighting, elderly issues – they are only nationalistic, white supremacist violent thugs. If this is how their followers try to advance their cause, let’s ensure we stop sharing their posts at the very least, and let’s make sure they don’t get a foothold.

The US is rapidly becoming ruled by gunpower – let’s ensure that never happens here.

  • Comments enabled – see comments box below. Note, all comments will be moderated.

[Aberdeen Voice accepts and welcomes contributions from all sides/angles pertaining to any issue. Views and opinions expressed in any article are entirely those of the writer/contributor, and inclusion in our publication does not constitute support or endorsement of these by Aberdeen Voice as an organisation or any of its team members.]

Jun 172016
 

By John Wallace.

Teach-The-WorldUsing the Scottish Government’s own figures, 300,000 people in Scotland have been totally ignored in the badly thought out and intrusive named person legislation.

People living with a rare disease and their families face significant social and daily life challenges which affect their autonomy, their dignity and their fundamental human rights.

It is not rare to have a rare disease, there are between 7,500 rare diseases in Scotland, 75% of them affect children and 80% are hereditary.

Integrated care provision in coordination between medical, social and local support services, via multidisciplinary care pathways and innovative care solutions, is a crucial game changer to tackle the unmet social needs of people living with rare diseases and none of this was even considered in coming up with the named person legislation. Nobody asked anyone in the 300,000 strong rare disease community in Scotland.

Families of children with rare diseases represent a motivated group striving to find what is best for their loved one, and the vast majority make the time and find the energy to sift through many thousands of pieces of information to find that one pearl that helps their child turn a corner, no matter how small.

They understandably dedicate their lives to researching their children’s condition. This dedication, in turn, can mean that even as they turn to medical professionals for help, it is those same professionals that in fact look to the parents for guidance.

Parents are accustomed to being the experts; in fact, they are acknowledged to know more than the specialists, even at renowned children’s hospitals worldwide, because while we expect our doctors to be experts in all things medical, the truth is they are not, they often have little knowledge outside the area of their expertise.

Most doctors who treat a rare disease child may never even heard of, much less have any degree of medical expertise in, the disease at hand, including our GP and both pediatric and adult consultants.

My son is eight-years-old and the only child in the UK with Familial Cold Autoinflammatory Syndrome Type 2. It is a gene mutation which makes his autoimmune system stay on when it should have switched off, attacking his body – a lot of his life is in pain and is at times totally unable to walk. My wife has the same hereditary disease.

We have a brilliant working relationship with my son’s school. Whether his attendance is at 50 or 80 per cent (depending on his illness), we all work together to ensure that his education is kept up to date.

The drug is fairly toxic and had massive painful and traumatic side effects

We see medical professionals in Edinburgh on average twice a week, have appointments in London every few months. From the professors down, they tell us that in fact we are the disease’s experts and they take guidance from us.

Even before diagnosis we brought together hospital, school and family to ensure everyone is aware. At present there are five drugs which might help alleviate some of the symptoms. Four of those drugs seriously compromise the immune system and have extremely serious and painful side effects and are trials, used in other conditions, because the condition is so rare.

The least toxic one did no good. The second one caused his condition to seriously deteriorate. The third drug he tried after seven months deliberation, against our gut instinct. The drug is fairly toxic and had massive painful and traumatic side effects. It was our 34 days of hell watching our son going through so much pain and fear, watching his condition get worse, and dealing with his fear of us giving him the daily injections directly into the lesions on his legs.

Thankfully, the consultant agreed with us that enough was enough. My son, to this day a year later, still winces at the mention of the drug’s name.

What if our consultant changed and the new consultant wanted us to try a drug we were not happy giving to our son, or indeed try once again the drug which gave us our 34 days of hell? The legislation allows the consultant to contact the named person and promote said views without even consulting us. This is a fact and it is not open to discussion.

We go out of our way to enable everyone dealing with my son to work together, whether that be professors, consultants, GP, rheumatology nurses, physiotherapists, occupational therapists and all the other medical professionals and the educational professionals in school.

We make the time to ensure that every single minute of my son’s life is as meaningful and fulfilling as it can be. I am the named person and I can do it better than his head teacher or anyone else because I live with it 24 hours a day, 365 days a year I don’t take school holidays nor weekends off. I am with my son whenever and wherever he needs me.

No matter what trials and tribulations I go through with my son’s and wife’s condition, the one thing that keeps me awake at night is worrying about getting a new consultant or a new head teacher who tries to force my family down a path I don’t want to follow for my son’s treatment and I know I am not alone in my thinking.

(Previously published in the Scottish Sunday Express. Reproduced by kind permission of the author.)

  • Comments enabled – see comments box below. Note, all comments will be moderated.
Jun 102016
 

With thanks to Eoin Smith, Senior Account Executive, Tricker PR.

Jenni_head and shoulders 1Representatives from local tourism body VisitAberdeenshire are heading south of the border to promote the north east of Scotland to international MICE (meetings, incentives, conferences and events) buyers later this month. Business development director Peter Medley and Jenni Fraser (pictured), business development manager, will attend The Meetings Show in London from 14-16 June, to promote the region to the lucrative meetings, events and conferencing market.

Over 5,000 meetings industry professionals from across the globe will attend the exhibition, where they will have the chance to learn about the new developments in Aberdeen and Aberdeenshire’s venue and incentive offering.

As well as exhibiting to the masses, Peter and Jenni will meet with key business MICE buyers in order to discuss the finer details of what the region has to offer business travellers.

Peter Medley says,

“Attending events like The Meetings Show is an incredibly important step in marketing Aberdeen and Aberdeenshire as a business travel destination to the wider world.

“Although business tourism has dipped in the north east of Scotland over the past year, there are a number of new developments which will make the region an incredibly attractive prospect for those organising world-class conferences and events.

“Hotel room rates, which were once at an all-time high thanks to the high level of energy industry professionals visiting the city, are now at a much more affordable level, making the region much more enticing to those looking for an affordable – and well-equipped – destination to hold a conference or event.”

Improvements to Aberdeen and Aberdeenshire’s infrastructure are making it easier than ever before for overseas travellers to arrive in the north east. Aberdeen International Airport is currently undergoing a £20 million expansion programme, which will see its landside, airside and security facilities improved and updated.

Coupled with new flight routes from Icelandair, which open up faster routes to many US cities and other global destinations, it has never been simpler to travel to Aberdeen and Aberdeenshire.

But it is not just the region’s travel facilities which are being overhauled. The Aberdeen Exhibition and Conference Centre (AECC) is about to undergo a massive £333 million redevelopment and relocation, which will see it moved closer to the airport and the Western Peripheral Route.

Due to open in 2019, the new AECC will provide greater connectivity and convenience for those travelling to exhibitions and conferences in the area. New flexible space – including a subterranean area for holding large exhibitions – will provide greatly improved facilities for those organising events.

Similarly, Aberdeen Art Gallery and the Music Hall – both situated in Aberdeen city centre – are experiencing major renovations worth £30 million and £7 million respectively. Providing the perfect venues for gala dinners, drinks receptions and conferences, these new and improved venues will be major assets to the region’s business tourism offering.

Peter concludes,

“When many think of Aberdeen and Aberdeenshire, their mind springs immediately to oil and gas, however the region has much more to offer meetings and conferences in all sectors – as evidenced by the wide variety of events celebrated by the Team Aberdeen Ambassador Awards earlier this year.

“The north east is also well equipped to cater for the incentive travel market. We are incredibly lucky to have a number of world-class golf courses in the region, including Royal Aberdeen and the Trump International Golf Links. Add to this a number of spectacular whisky distilleries which offer tours and tastings throughout the year, and it becomes quickly apparent just how much the region has to offer.

“We look forward to meeting event organisers from a wide variety of industries at The Meetings Show in London, and revealing to them exactly what Aberdeen and Aberdeenshire can provide.”

For more information about VisitAberdeenshire, visit www.visitabdn.com

  • Comments enabled – see comments box below. Note, all comments will be moderated.

 

Jun 032016
 

By Suzanne Kelly. Photos courtesy of Pirate Photography Aberdeen.

Egle2This year’s Gray’s School of Art Graduate Fashion Show lived up to expectations and in some areas exceeded them. The wide variety of designs on show, the craftsmanship, the wide range of inspirations all made this another memorable fashion event for the school.

Salmena Carvalho , Fashion & Textile Lecturer / Fashion Show Curator said:

“Our graduate fashion show is a great opportunity for our students to showcase their final year collections to an external audience. This year we presented a variety of work ranging from womenswear, menswear, knit, print and mixed media. It is always an exciting time for us as we are able to collaborate with other creatives for this annual event. “

It is difficult to pick out favourite pieces or designers from such a large field, but here in their own words are some of the designers, with a few comments from me.

Nicole Ferry – Corruption.

Nicole Ferry“My collection explores the current negative affairs in society and visual attributes which connect with this theme. From politics to riots, my collection aims to convey the extent of negativity in our everyday lives.

“Gray’s graduate fashion show was a complete success. Finishing my university journey on a high.

“Myself and fellow students are incredibly proud of the collections we produced and the blood, sweat and tears was definitely worth it when viewing your garments on the catwalk. “

Nicole brought us a futuristic vision in a collection which echoed social unrest and pending problems throughout – whether directly by slogans written on clothing or via clothes geared to obstruct your face, which I found food for thought in a world where surveillance and social activism are increasing.

Natalie Anderson said:

Natalie Anderson“The graduate fashion show is a great way to unveil our creations. There is a massive amount of planning and organising that our tutor Salmena undertakes in order to make it a success for us students.

“It was great to see it all set up and everything taking place.

“Everything is done with precision from the picking of the models to deciding the music for each individual catwalk collection.

“The running of the show went smoothly and was a great achievement for all involved. “

Natalie made several stunning pieces; a luxurious black coat with very interesting textures in the nape of the fabric was far more stunning than any real fur piece could ever be.

It was both echoing dramatic costumes of the past (I thought of a full-length portrait by Holbein of Christina of Denmark) and pointing to the future with its clean lines, flow and interesting textures.

April Hay commented on her work:

april hay“My collection is the result of a relationship I built between textile design and mineralogy.

“I believe very strongly that design and science go hand in hand and hope my work sets an example of how a cross disciplinary project could work between them.

“Working with The National Museum of Scotland enabled me to materialise a body of visual and mental research into mineral specimens whilst the facilities at Gray’s School of Art were used to create the garments and textile pieces.

“Photography, photoshop manipulation and digital print are the techniques used in my collection. “

Lisa Campbell helped organise the show; I’d seen the progress of her stunning work when I was taking an introductory course at Gray’s. The striking use of origami principles mixed with Op Art has created stunning, unique fashions.

Lisa CampbellShe says:

“The Fashion Show weekend was an exhilarating experience and I can’t quite believe that it’s all over.

“There was a huge buzz of excitement during both shows, seeing everyones collections finally come together and all the hard work finally paying off.

“We have received a lot of positive feedback following the fashion show.

“As a member of the fashion show committee it is particularly rewarding to see all the elements that I have helped organise come together to showcase the work of the class.”

Egle Mazeikaite had a very elegant and extremely feminine collection; Egle explained:

“The starting point for this collection was femininity and ways of expressing it through contemporary fashion. The focus is on the concept of envelopes being an enclosing structure which contains something personal – in this case the idea of femininity.

“Using the conceptual aspects of an envelope (such as triangular overlapping shapes and the shiny strip representing the glue strip which secures an envelope and conceals its contents) the pieces in my final year collection enclose a personal message, trying to find the balance between the feminine and masculine, containing the delicacy of colour in an enclosing structure and expressing the nature of a modern woman.

“My work is feminine and carries a personal message, encouraging the wearer to be empathetic and vulnerable in order to be in touch with her femininity.”

While I wish there were space for every artist and designer’s work here; finally we have Mhairi Buchanan who explained her work:

mhairi buchanan“Decomposition and Decay, my Fashion and Textile collection has been inspired by the decay of florals. Beauty is highly desirable in this day and age.

“I feel that we are too quick to discard items because they could be a little past their sell by date. My collection is digital images of dying flowers, that have been manipulated into arrangements to revive them, and make them beautiful again.

“With this in mind, I have created textiles that are embroidered with layers of digitally printed flowers. The skirts and tops have been designed with the idea that they can be worn at any occasion. Although they may look like ball gown attire, they are versatile and could be used as separates for any event.”

It’s quite a challenge for next year’s graduating class to equal this work; and we’ll see what they do, and where these talented designers will go – great things are expected of them all.

  • Comments enabled – see comments box below. Note, all comments will be moderated.
Jun 032016
 

Dreich_Encounter_2Duncan Harley reviews ‘Dreich Encounter’ at His Majesty’s Theatre Aberdeen,

In the classic 1945 David Lean romantic drama, Brief Encounter, Laura famously meets Alec at the local railway station and the chance encounter leads to unexpected consequences including an emotional love affair

In the classic 2016 Flying Pig’s comedy drama, Dreich Encounter, both Celia Johnson and Trevor Howard are conspicuously absent.

Mither meets Faither on the sofa and then in the bedroom and then yet again in the sitting-room. Screenwriter Noël Coward would have simply loved the unconventionality of the Pig’s production.

Dreich is such a wonderfully emotive adjective. In a 2013 YouGov Plc opinion poll, which asked adults across the country to select their number one Scots word, it ranked well ahead of sleekit, glaikit and even blether; and a recent Tripadvisor review of the shortbread tin favourite Eilean Donan Castle really put the welly in when it concluded that the place was “dreich AND disappointing”.

Aberdeen’s very own Flying Pig’s latest offering ‘Dreich Encounter’ is far from dreich and certainly far from disappointing.

‘Father Ted meets Ivor Cutler’ utterly fails to describe this production adequately. With past classics such as ‘Stanley Cooslick’s Clockwork Sporran’, ‘Finzean in the Rain’, ‘All Quiet on the Westburn Front’ and ‘How to Look Glaikit’ firmly behind them; this new production elevates the Pig’s very own brand of parody-punkesque Doric humour to completely new levels.

From the moment the show opens with the startling announcement that “this evening’s performance has been sponsored by naebody” to the final sketch where Cooncillor Croonie introduces the theatre audience to the new and improved Aberdeen Town motto, no-one and certainly no public institution is safe from gentle ridicule.

As musical comedy sketch revue, ‘Dreich Encounter’ goes bravely where no-one else usually dares or wins. In fact anyone daft enough to emulate the Doric dynamos risks being put up against a wall in Broad Street and executed by firing squad.

Predictably, the Donald gets a mention, as does the Robbie Shepherd. Less predictably Anuptaphobia, medically defined as “a morbid fear of staying or remaining single” features briefly, and the Rodgers and Hammerstein classic ‘You’ll Never Walk Alone’ is sung with more up-to-date lyrics including the hilarious line “When you walk through the storm, hold your head up high and don’t be afraid of the duck.”

There are 28 laughter-strewn sketches, featuring the likes of grand piano player Hilton John, the dulcet-toned, tartan-trewed Delmonte-jacketed Buckie Drifters, and of course Archie and Davie: this is a show which has something for everyone. Classics include the Bakery Wifies, a Doric A to Z, and Meikle Wartle TV, surely a parody of the Garioch’s very own household favourite, Kintore-based Turnip Radio.

Then there are the words and phrases. Best not repeat the punch line “I’m aff for a shite” perhaps; however lard arse, wobble-bottom and pleiter certainly make it into the non-expletive top ten.

For my money, Mither’s Happy Days and Mither’s Happy Anniversary represent the best that ‘Dreich Encounter’ has to offer. Reminiscent of Cutler’s Glasgow classic “Life in a Scotch Sitting Room”, “Mither” gently parodies the folk memories of the North east.
In fact you can almost taste that delightfully carbonated Blue Nun and those cheesy pineapple hedgehogs.

A Flying Pig Production, Dreich Encounter plays at HMT Aberdeen until Saturday 11th June

Tickets from Aberdeen Performing Arts Tel: 01224- 641122

Words © Duncan Harley and Images © APA

Jun 022016
 

Eilidh meets with Stagecoach managers and local residentsWith thanks to Kenneth Hutchison, Parliamentary Assistant to Dr. Eilidh Whiteford

BANFF & Buchan MP Eilidh Whiteford has spoken following further meetings with Stagecoach managers regarding the new buses serving the Buchan area.

The meeting follows dozens of complaints from constituents regarding the accessibility of the buses, which have been causing problems for passengers with mobility impairments, less agility, and those travelling with small children.

The vehicles, which were introduced last year, have sparked a campaign for more accessible public transport in the constituency.

Dr Whiteford met with the designers of the bus, Stagecoach representatives, and constituents affected by the problem, on Friday May 20.

Speaking afterwards, Dr Whiteford said:

“It’s quite clear that Stagecoach have made a mistake in choosing this particular model. While it may meet the statutory requirements, I continue to receive complaints from bus users. Given the number of older people, disabled passengers and parents of babies or toddlers relying on the buses, it’s important that our public transport is accessible to all parts of the community.

“In terms of the legislation, I will be seeking a debate on bus accessibility at the earliest possible opportunity.

“I will also continue to maintain pressure on the company to come up with a solution to this problem. Our public transport needs to be fit for purpose. ”

  • Comments enabled – see comments box below. Note, all comments will be moderated.

[Aberdeen Voice accepts and welcomes contributions from all sides/angles pertaining to any issue. Views and opinions expressed in any article are entirely those of the writer/contributor, and inclusion in our publication does not constitute support or endorsement of these by Aberdeen Voice as an organisation or any of its team members.]

May 272016
 

Eilidh and Gillian2With thanks to Kenneth Hutchison, Parliamentary Assistant to Dr. Eilidh Whiteford

SNP representatives have met with senior staff at NHS Grampian to discuss ongoing recruitment challenges in the north east.

Banff and Buchan MP Eilidh Whiteford and Gordon MSP Gillian Martin met with managers on Friday, while Stewart Stevenson MSP has scheduled a meeting with senior representatives for next month.

Speaking after the event, Eilidh Whiteford said:

“This was a very constructive meeting, which gave NHS representatives an opportunity to brief MPs and MSPs on the progress NHS Grampian is making to deliver integrated health and social care services, new investments across the North-east, and efforts to tackle the GP shortages in some rural areas.

“I was reassured to see NHS Grampian taking the recruitment shortfalls so seriously at senior levels.

“Although there’s no quick fix overnight solution to what is a complex problem, lots of options are being pursued, including working with the universities to do more to encourage young medics to see General Practice as an attractive career, and casting the net wide to encourage GPs to move to the area.”

Gordon MSP Gillian Martin added:

“Today was very useful for me to meet all the members of NHS Grampian’s leadership team and to be able to put some questions to them about health related issues in Aberdeenshire East. We were able to have a very constructive dialogue about issues surrounding GP recruitment and new models of primary care, and I look forward to working more closely with them as we go forward “

  • Comments enabled – see comments box below. Note, all comments will be moderated.

[Aberdeen Voice accepts and welcomes contributions from all sides/angles pertaining to any issue. Views and opinions expressed in any article are entirely those of the writer/contributor, and inclusion in our publication does not constitute support or endorsement of these by Aberdeen Voice as an organisation or any of its team members.]